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SEND EDUCATION SERIES: Ehlers Danlos Syndrome

Updated: Aug 2, 2023

Our SEND Education Series covers different Special Educational Needs and Disabilities. Here we discuss Ehlers Danlos Syndrome.

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders (connective tissue is the tissue which provides structure to other tissues and organs in the body.)

The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

The 2 most prevalent types of EDS that we see are classic-type and hypermobile-type Ehlers-Danlos Syndrome.

90% of individuals with EDS will be diagnosed with hypermobile-type. However unfortunately, there is no genetic test for this variant yet!

What are the symptoms of hypermobile-type?

Tutors at Learn With SAT have undergone career development programs on EDS ( as well as other SEND education topics) , and can tailor their education to fit the needs of a child with EDS, whether this is for an Education Other Than At School (EOTAS) programme, or for top-up tuition. If your child has EDS and you'd like to discuss either of these options with us, we offer a free consultation, just fill in the free consultation form on our home page.

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